Showing posts with label fibromyalgia. Show all posts
Showing posts with label fibromyalgia. Show all posts

Monday, February 29, 2016

Bath Soak Recipe: Sore Muscle Help

I just played around with some herbs and other things I had in my cabinets to create a soothing bath soak.

In the HOTTEST water I could stand, I added the following:
2 menthol crystals
1 cup dried calendula flowers
1/2 cup dried hibiscus flowers
a pinch of dried peppermint leaves
1 tablespoon yellow dock powder
1 tablespoon marshmallow root powder
1 cup Epsom salts.

Soaked for an hour.

Significantly helped decrease my pain from the fibromyalgia flare I have been experiencing today.

Going to follow the bath with a couple glasses of cold lemon and peppermint water.

Sunday, November 23, 2014

Easy Egg Salad for hurting hands

I wanted to make egg salad this weekend, but with the weather changes, my hands are definitely hurting a bit with fibromyalgia and arthritis flare.  SOOOO.... time to problem solve.

And the answer was ...  Use the oven.

Break raw eggs into a glass baking dish.  (I used 20 eggs and can definitely state that cracking eggs is MUCH easier than peeling boiled ones!!).

Cover with a layer of parchment paper to reduce development of tough layer of baked egg. (The layer that forms when baking eggs is kind of like taffy and gets stuck in your teeth.  The parchment paper fixes this.)

Put glass baking dish in oven and turn onto 350 degrees fahrenheit.   Bake for 45 minutes (until completely baked in the center).

Remove from oven.  Let cool.

Chunk up and drop into a food processor or blender.  Pulse to mince up the egg into bits.  Dump into a mixing bowl.

Add mayo and mustard to taste.  Stir.

(For me, I make my mayo and add mustard powder to it so that I only have one thing to add.  Also, I mix the mayo/mustard into the eggs in the same food processor - so no by hand mixing.)

To make your own mayo:
1 raw egg. (If raw eggs flip you out, this works just fine with pasteurized egg-beaters or other egg substitute)
1 teaspoon garlic powder
1 teaspoon (or maybe 2 teaspoons) onion powder.
1-2 teaspoons mustard powder.

BLEND.

1/2 tablespoon or so lemon juice. (the longer you wait to add lemon juice the hotter the mustard powder develops)

BLEND

DRIZZLE SLOWLY into blender mixing on high speed 3/4 cup oil.

The oil makes an emulsion with the egg mixture.  Drizzling it in slowly is the trick to getting your mayo mixture to solidify.

You can also add other spices or herbs to the mix instead of the mustard for southwestern or italian or other types of dressings.  Vinegar instead of lemon juice and sugar = sauce for crab salad.

Sunday, September 14, 2014

Tips to open jars when your hands may not work the way you want:

Tips to open jars when your hands may not work the way you want:

to open sealed jars - IF YOU DON'T HAVE TO USE THEM AGAIN COMPLETELY SEALED - use a bottle opener to pop the seal, then the lid will open easily.

To open one you have to have sealed again, run REALLY hot water over the lid for a minute or so. USING A (Silicone is best) POT HOLDER SO YOU DON'T BURN YOUR HAND, twist the lid. Metal expands faster than glass so the heat loosens the lid.

If you don't have a bottle opener, pound a nail into the top of the lid to break the seal. Be careful to use a clean nail, and not to hit the lid so you don't break the glass.

Sunday, August 25, 2013

Fibro Colors: What is Fibromyalgia Awareness to you? -- something that is important for everyone to read!!



  • This was posted by Fibro Colors on Facebook.  It is worth reading and certainly something essential for all people who have chronic illness or care for someone who has chronic illnesses - regardless of type of illness.

    What is Fibromyalgia Awareness to you?

    I believe Awareness is anything that is put out for others to see.
    Whether it be a poster, questions, pictures, articles or stories. I find all information useful.

    I am not one to complain, I get up and do what I can each and every day of my life. I have some days I can do a lot, some days I can do a little, and some days I can't do anything.
    I do not get to decide my days.
    I find there are days when I think I can do something and my body changes everything for me. Living with Fibromyalgia is not a easy thing to do for anybody. One thing I will never understand is the judgement we deal with from others who live with Fibromyalgia.

    Every single one of us that live with Fibromyalgia have had to learn to endure and do the best we can with every moment we have. Some of us are able to do more and some of us are not able to. I do not understand the judgement if somebody says they can't do something that is their choice. We have people who have lived with Fibromyalgia nearly their whole life and they have learned through time what they can and can't do. We also have newbies that are just learning what Fibromyalgia is and they are overwhelmed and scared beyond belief. I think if we were all honest each and every one of us has been through these emotions and some of us still are going through them. Living with Fibromyalgia is not a choice.

    I made FibroColors to spread awareness plus to also get to all those people out there who think they are alone and show them they are not. I also made FibroColors for others to share their experiences and how it is for them living with Fibromyalgia.

    There is no need for judgement!
    There is no need for rudeness!

    There is a need from each and every one of us to take a moment and pause when we think others are just complainers. Not one of us is in the others shoes. We are in our own. Each day we have our own battle to endure. If you see somebody and they are down and not doing good please remember one day that was you. Some of our members do not have family or friends for support. Some of our members are losing losing their homes due to not being able to work. I do not believe for one minute they made the choice to sit at home and lose everything.

    If you take time to read this and this page is not for you I understand. This page is LIKED by choice. We all get choices each and every single day of our lives. We get choices from the minute we wake up to the minute we go to sleep. Fibromyalgia is not a choice and we can't wish it away. If somebody is to say they can't do something it does not make them any less than who you are.
    Maybe you are able to do more and you find the strength to push yourself hard. Only you know how much you pay for this decision. Others who push themselves because there is no other choices are suffering just as much as those who can't do anything due to health issues. NOBODY owns the entitlement of greatest sufferer to Fibromyalgia to have ever lived. Our days are hard and each and every one of us does the best we can. Some days we accomplish something and other days we do not.

    We get enough judgement from others we surely do not need to give judgement to others who suffer Fibromyalgia.

    I live each and every day of my life to the best I can. I do not complain. I push myself as hard as I choose to do. Some days I push myself too hard and I pay dearly for quite a period of time.
    Other days I try to remember if I do this the outcome might not be good. Every day is a challenge for me. I wake up each day to be surprised of how I get to feel and then my greatest challenge is to do my best with what I can. I am beyond thankful for each and every day I get to be here. I am grateful for anything I can do to make another persons life easier. Some days I can give information that helps other days I can only listen.

    I believe each and every one of us has something to offer another person who is dealing with Fibromyalgia, chronic pain or any other health issue. We all suffer just in different ways at different moments each and every single day of our lives.

    If you see somebody saying their "life sucks" maybe right now it does and they need support for strength and this is where the others in the group can shine. We each have been in that spot.
    It takes time to learn to adapt to Fibromyalgia.

    I do not see this page as anything but awareness!
    Truth is truth no matter how pretty of a picture I can put on this page. There are days that are hard and it takes strength to push onward. My inner strength is GOD, my family and me! I push myself because I need to push myself because if I don't I am giving up on me.

    I post questions by others not for a venting session.
    I post questions by others so newbies and oldbies can see all kinds of responses to what the question is about. Some of us are right there beside the person with the issue and some of us have found ways to deal with that issue. Again, it takes time to learn. There is no book to acceptance. We all have to do our time.

    If you are new and need information please understand life is not over. This is hard and each and every single person living with Fibromyalgia can attest to this no matter what stage they are in now. You will learn things by reading what others do and you will find things to try that might just help you out. There is no right or wrong way about anything you try to do. I could tell you to do what I do and it might not help you or it might just be the answer. If one thing doesn't work move on to the next thing.
    You will have times of great disappointment and it will take all your strength to push forward. I want you to remember you have the strength! Remember these are moments and moments do pass. I just don't have the answer for when and how the moments will be or when they will be good. Do your best to learn anything you can do. Do not let others discourage you!
    Every single one of us has been there.

    If you have lived with Fibromyalgia a long time you are more aware of how hard this is for newbies. Please take a moment and pause and remember they are scared.

    At the end of the day each and every one of us has to be accountable for who we are. We do not need more judgement.
    Fibromyalgia is not a choice!

    If you feel you have positive information that could help others please message me the information. If you have found ways to make life easier please message me the information. If you do not like this page please don't take time to message me just unlike the page and move on. Every one of these pages on Facebook is full of information in many different ways.

    Again, I made FibroColors to get Fibromyalgia awareness out there. I also made this page to let others know they are not alone.
    I believe each and every single one of us can offer something to somebody else to help them. This of course comes with a choice to do it. I want to thank all of you that are here with me and helping make this page grow by LIKING, SHARING or COMMENTING.

    Alone we are small but together we are MIGHTY!
    Blessings!

     Cindy
    Fibro Colors

Sunday, August 11, 2013

Question was asked on one of the support groups to which I belong: What motivates you to keep on with your goals?

  • MY response:

    Laura A Collins Sheer unadulterated stubbornness. I will be damned if I do not live my life... "They" (people who have done damage to me and mine) and "it" (fibro) WILL NOT WIN.

  • Laura A Collins The second part of that is determination to believe (most days - cause I do have sulking and pity party days too!) that I will do what I can and IT WILL BE ENOUGH!


  • Laura A Collins I had a professor once in college who carried a pack of index cards in his pocket. He would write things down on the cards and then use those as reminders. When I asked about it, he told me he only had so much room in his brain - so only the most important things went into his memory. All non-important things went onto the index cards. Therefore, he was certain that if he did not remember something it WAS NOT important.

    For my life, I try to use the same philosophy. I do the important things - come Hell or high water. If it does not get done, then obviously it is NOT important.

Saturday, June 1, 2013

A letter by Jenna Alexander - Regarding Fibromyalgia, but could apply to ANY CHRONIC ILLNESS!

Hi All, this is a letter by Jenna Alexander, who is a member of one of the support groups to which I belong.  She wrote it about her experiences with Fibromyalgia - one of the invisible chronic illnesses which can change the course of a person's life.  I asked her if I might share this, as it is both eloquent and accessible.  She kindly granted permission.  I hope if you see yourself in this letter, you feel not quite alone and I hope if you see loved ones and friends in this letter, you give yourself permission to be ok with NOT understanding even while you accept that your loved ones and friends have limits that are moving targets from day to day.  It is ok to not know the answers and changes of the illness, but to love and to accept the PERSON for WHO HE OR SHE IS!

Laura

Jenna Alexander's Letter
I just wanted to share this with all of you, my fellow fibro warriors. I have finally started to feel better after the long months of constant flaring this year and I have decided I am not letting go of that positive attitude. This is a letter I wrote to my family and friends on FB since my writer's mind is FINALLY clear enough to actually write something I think makes sense (lol!) and is possibly maybe somewhat profound? I don't know. Tell me what you all think if you can please ^_^

Love you all, Gentle hugs! Hope everyone is enjoying good weather and a pain free day!

Jenna

A Letter to My Friends and Family: My New Positive Outlook as a Fibro Warrior

Dear friends and family: I would love it if you could all read this and tell me your thoughts ^_^ (I know it's long, but I am at a turning point and had alot to say)

This week, I have been working very hard to change my attitude about the life I have been granted.

With all of the health issues, new diet restrictions, new doctors, new meds, new living situations, new money issues, the previous 2 TOUGH semesters and the upcoming new experience of student teaching, I have lost sight of a positive outlook. I have been dwelling in the negative, wondering "Why Me?!?!", raging against the things I can't control, and allowing myself to give up simply because anyone else in this amount of pain and mental fog would socially be allowed that option.

But I know I can't keep doing this. I have pushed so many people away in my life because their needs that I can't fulfill make me feel worthless or their constant positivity and comments about how "everyone feels that way sometimes" make me feel belittled and crazy. Constantly feeling like no one understands the pain I am in or the horrendous struggles I have gone through to fix it has made me angry with people I love. I have also sabotaged my own health at times by trying SO hard to be the fun person everyone wants me to be that I make myself sicker, and then I am even angrier with those people who I feel just can't accept my limitations and still want to be around me.

So today I am making myself a promise. I am not going to push people away anymore and I am not going to look at this life as a punishment, asking God everyday what I did to deserve this. I didn't do anything wrong and this struggle God has put in my path is meant to make me stronger not hateful. I am finally starting to feel better after months of wanting to cry and scream everyday and I am not going to let that good feeling go.

I am promising myself today that I will love and show patience to even those who don't understand instead of envying them and being angry with them. However, I also promise myself that I will no longer feel bad about my limitations. I won't make myself sick for someone who only wants to spend time with me when I am in a FANTASTIC mood. It's just not realistic. A TRUE friend will want to be there for you through all the good AND all the bad. I will work as hard as I can to overcome all my limitations in a HEALTHY way and to stay positive about it so I don't bring anyone else down, but until I can overcome my limitations, I can't keep fighting against them- especially not for people who don't truly care about me as a friend.

So, to all my friends and family I want to tell you this- If you can't love me and want to spend time with me in both my best AND my worst times, than I can't have you in my life. Your complete refusal to understand is your choice and shows me that you are not worth my time and I am not worth yours. I understand that for some people, having a friend with a chronic illness is just more than they can handle. That their own lives are to full of struggles for them to help me take on mine. It is ok, I get it, but please don't pretend to be my friend if you are one of these people. It just hurts both of us in the end.

HOWEVER, for those that love me and want to understand, but just haven't been able to yet, I want to apologize for being angry with you. There are many times when I don't understand my own disease, so it is unfair to expect you to just figure it out right away.

So, what I ask of you now is that if you truly want to be my friend, that you simply accept the fact that I know my body, I know my limitations, and just because I am not up for something doesn't mean I don't love you or want to spend time with you. If you can accept that and you can accept that my illness means the way I feel physically and mentally constantly changes (IE. 1 day or 1 hour I am cleaning like a madwoman full of energy, joy and completely clear headed and the next I am crying on the couch, sounding crazy, getting overwhelmed or falling asleep in my chair and forgetting what I said or did five seconds ago), then our friendship will make it.

Also, please don't be offended by my posts about Fibromyalgia. When I post articles, it isn't to make you feel like I am angry with you for not getting it. I am posting the articles 1. For myself so I don't lose them (lol) and 2. For you IF you want to get to know more. I want so desperately for all of you to understand and these articles help me share with you when I just don't have the words to explain (which happens more often than I imagined possible ;) ), I don't want you read these so you can pity me or baby me, but so you can truly see who I am right now and decide whether or not you can accept me for it, accept me for the fact that I sometimes can't function and I sometimes need help even though other times I act like superwoman.

So, I love you all and I hope our friendships will weather this crazy storm.

Sincerely,

Jenna Kaye Alexander
Fibro Warrior

Tuesday, May 7, 2013

Clipped from Fibro Colors on Facebook


WHAT YOU SHOULD KNOW ABOUT ME

1. My pain - My pain is not your pain. It is not caused by inflammation. Taking your arthritis medication will not help me. I can not work my pain out or shake it off. It is not even a pain that stays put. Today it is in my shoulder, but tomorrow it may be in my foot or gone. My pain is believed to be caused by improper signals sent to the brain, possibly due to sleep disorders. It is not well understood, but it is real.

2. My fatigue - I am not merely tired. I am often in a severe state of exhaustion. I may want to participate in physical activities, but I can't. Please do not take this personally. If you saw me shopping in the mall yesterday, but I can't help you with yard work today, it isn't because I don't want to. I am, most likely, paying the price for stressing my muscles beyond their capability.

3. My forgetfulness - Those of us who suffer from it call it fibrofog. I may not remember your name, but I do remember you. I may not remember what I promised to do for you, even though you told me just seconds ago. My problem has nothing to do with my age but may be related to sleep deprivation. I do not have a selective memory. On some days, I just don't have any short-term memory at all.

4. My clumsiness - If I step on your toes or run into you five times in a crowd, I am not purposely targeting you. I do not have the muscle control for that. If you are behind me on the stairs, please be patient. These days, I take life and stairwells one step at a time.

5. My sensitivities - I just can't stand it! "It" could be any number of things: bright sunlight, loud or high-pitched noises, odors. FMS has been called the "aggravating everything disorder." So don't make me open the drapes or listen to your child scream. I really can't stand it.

6. My intolerance - I can't stand heat, either. Or humidity. If I am a man, I sweat...profusely. If I am a lady, I perspire. Both are equally embarrassing, so please don't feel compelled to point this shortcoming out to me. I know. And don't be surprised if I shake uncontrollably when it's cold. I don't tolerate cold, either. My internal thermostat is broken, and nobody knows how to fix it.

7. My depression - Yes, there are days when I would rather stay in bed or in the house or die. I have lost count of how many of Dr. Kevorkian's patients suffered from FMS as well as other related illnesses. Severe, unrelenting pain can cause depression. Your sincere concern and understanding can pull me back from the brink. Your snide remarks can tip me over the edge.

8. My stress - My body does not handle stress well. If I have to give up my job, work part time, or handle my responsibilities from home, I'm not lazy. Everyday stresses make my symptoms worse and can incapacitate me completely.

9. My weight - I may be fat or I may be skinny. Either way, it is not by choice. My body is not your body. My appestat is broken, and nobody can tell me how to fix it.

10. My need for therapy - If I get a massage every week, don't envy me. My massage is not your massage. Consider how a massage would feel if that charley horse you had in your leg last week was all over your body. Massaging it out was very painful, but it had to be done. My body is knot-filled. If I can stand the pain, regular massage can help, at least temporarily.

11. My good days - If you see me smiling and functioning normally, don't assume I am well. I suffer from a chronic pain and fatigue illness with no cure. I can have my good days or weeks or even months. In fact, the good days are what keep me going.

12. My uniqueness - Even those who suffer from FMS are not alike. That means I may not have all of the problems mentioned above. I do have pain above and below the waist and on both sides of my body which has lasted for a very long time. I may have migraines or hip pain or shoulder pain or knee pain, but I do not have exactly the same pain as anyone else.

I hope that this helps you understand me, but if you still doubt my pain, your local bookstore, library and the internet have many good books and articles on fibromyalgia.

Author's note: This letter is based on communications with people throughout the world, males and females, who suffer from fibromyalgia. It does not represent any one of the over 10,000,000 people with FMS, but it can help the healthy person understand how devastating this illness can be. Please do not take these people and their pain lightly. You wouldn't want to spend even a day in their shoes...or their bodies.

I thought this would be good to share!
Fibro Colors

Monday, April 22, 2013

An Introduction


I have never posted a blog before.  I have friends who post blogs and their continual creativity awes me.  How they find daily postings within themselves confounds me.

I have posted recipes, thoughts, and other work to my facebook page for the last several years.  However, my facebook page is locked and private.  And, as time passes, I find within myself the urge to share my recipes and thoughts…  and so… a blog.

Over the next several days/weeks, I will post the backlog of work from my Facebook page.  And then, as I create new recipes, have a thought here or there, or take photos of spring flowers, I will add to this blog.  I welcome your comments.  You are free to share anything you find here provided you attach my name to it and do not use it for your own financial gain.
Who am I?

That may be important as well – if you are deciding to follow this blog.  

I am an emerging counselor.  That means I am in the last bit of my Master’s of Mental Health Counseling Program.  Right now, I am an intern at the local Free Clinic.  So, much of what I think about is the state of mental health and trying to make sense of how different reality is from the myriad books I have read. 

**HOWEVER, any information posted on this blog is for educational purposes only and is NOT meant for diagnostic or individual counseling purposes.  If you feel you have mental health needs, please consult a qualified mental health professional or go to your local emergency room.

I have multiple allergies/intolerances..  I am allergic/intolerant to wheat, corn, coconut, millet, all grains, bananas, and lots of other things.  Someday I will post about those.  I participate in online support groups for corn-allergies.  I have fibromyalgia, but when I control the allergies, I am able to reduce or eliminate almost all fibromyalgia symptoms.  My theory is that allergies cause underlying inflammation... and it is this inflammation which triggers fibro symptom expression.
I am the single mother of a 16 year old son.  Family relationships and being mom are topics of interest. 

I am overweight.  Weight control and weight loss are topics I return to.  Often, these are tied to the Prochaska model “Stages of Change”.  Between allergies/intolerance, weight, and a lifetime love of food – I create a lot of recipes.  

I have a small (25-30 pound) dog.  Inky is neurotic, but lovable   He is a rescue dog and has taken quite a while (over a year) to recover mostly from his previous home.  He still has lots of anxiety.  His hips have damage and he also has hip dysplasia.  He takes medication daily.  

I have my own mental health issues.  I am OCD.  It took me years to learn to control the OCD.  Now, I am organized, and adapting to change takes me effort, but it possible.  I no longer have lists of lists nor do I obsessively arrange things.  However, I can organize the heck out of any schedule or event.  I have some degree of depression or cyclothymia.  This is controlled with 20 mg daily of Prozac (which lets me sleep), cognitive methods, and practicing of wellness.  We’ll talk about that on occasion as well.  Wellness is extremely important to me.  Wellness allows me to channel my mental health issues into strengths (like organization, accomplishing projects when have the energy boost of low level hypomania, etc.)  I have a holistic view of wellness and like to incorporate multiple domains.

I am a liberal in most political aspects.  That is something that will on occasion be a topic of conversation.  So will religion.

Pretty much – this is a blog where whatever comes to mind will find its way onto the screen.  Hopefully, there will be bits and pieces you enjoy or can use.  And, when something neither appeals to you nor applies to you, you are most welcome to skip that post or comment on your own point of view.  

I hope you are looking forward to this as much as I am.

:)

Laura